Thursday, January 10, 2013

RE Consultation: Update

Well.......
I had my consultation with the Reproductive Endocrinologist on Wednesday afternoon. Things are not looking to great for me. My fertility specialist said that I have four strikes against me: 


Strike 1: Four years without birth control and no pregnancies

Strike 2: Endometriosis (I hate that medical term)

Strike 3: Irregular periods

Strike 4: Tilted Uterus

(Photo Credit: The Gluten Doctors)

So there you have it. Right off the top, I have four issues that are working against me. Yes, I know, I have not had any testing yet. I am in the process. I will meet back with my doctor as soon as he has collected and reviewed all of the testing that my husband and I are gearing up for.

 I really hate my body. 

That is the only info that I have to give you at the moment, but I will keep you all posted. No matter how difficult things get in the future, my status and health will always be an open book. I want to document what it is like to live with endometriosis. I will always spread endo awareness, no matter how dark of a path it takes me on. I will not break.  However, I want to make those that do not live with this illness fully aware of what this disease can cause:

the inability to create life.

How do you cope with fertility issues?
xo Heather 


P.S. Sorry for the rant. I am very emotional tonight. Like many of you, I want a child so badly.

DIY Heating Pad

I wanted to show you a great video on how to make your own microwavable heating pad! 

I recently was given this idea from an Endo Sister and wanted to share it with everyone because it is such a great idea!

The supply list is simple: Rice, Fabric, needle, and thread (Or sewing machine)!

You also are able to customize the size, shape, and fabric to fit your own personal style and need!

Watch the video below!!


Are you going to make your own personal heating pad? If so, let me know in the comments below!

xo Heather

Endo Journey: Lynn

The following Endo Journey is Lynn Nelson's personal struggle with endometriosis. I am happy to share Lynn's story and hope that you also find it inspiring:


Over the years, I had always had trouble with my cramps and periods. Never thought much of it, until I was with my long term boyfriend and intercourse became extremely painful. It wasn't enjoyable anymore. So I went to the doctor to get an ultrasound. I got the call back, and I went into the office assuming the worst.

I was informed that I had an ovarian cyst on my left ovary. He informed me that it wasn't a major concern and sent me to a Gyno. The Gyno did the regular check up and said it would eventually rupture and I could move on with my life. 

Well, it didn't get better. It actually got worse. 

So a few months later, I went to another doctor and requested an ultrasound. I got the call back informing me that they referred me to another Gyno and that there weren't any concerns, again. I wasn't even in the doctors office 5 minuets when he informed me I would need surgery, to remove the cyst. It had begun to pull on my ovary and was clearly causing lots of pain. It was also growing in size. We booked surgery to happen a few months later. 

He informed me that he wanted to take photos, so I could see the cause of the pain. After waking up from surgery, I was a mess. I was so nauseous and I felt like crap. I went to leave, and I was informed that he only prescribed me T3's, after pumping me full of the good stuff. So the nurse on duty, gave me something to cope with the pain. I wasn't due for my after surgery check up for 4 weeks. 

In those 4 weeks, I was a mess.

Always in pain, bloated and cranky. Once those 4 weeks were up, my boyfriend and I went into the office with light spirits, but left with heavy hearts. See, the photos I was given, I assumed were of my cyst and then the one with the cyst removed. We were totally wrong. 

The doctor informed me that sometime before surgery, my cyst had ruptured. And in fact, I have Stage 2 Endometriosis, teetering on Stage 3. Because I was so use to the pain, the cyst rupturing felt like nothing. He explained that the scar tissuing was causing all the pain and that when I bled, it bled. It explained it all. The pain, the random cramps. He went on to tell us that fertility could be effected by it, but it wasn't a for sure. I was only 19, I was devastated. To know that I WILL have to endure more surgeries in my future and that I may not be able to conceive a child of my own, really hit hard. 

I was blessed with a boyfriend that got it all. He would get me heating pads, pain meds and do whatever he could do to help me during those rough times. 
Unfortunately, we aren't together anymore. And to be with new people, intimately is tough. I don't know how to tell them that sex may hurt me and we will have to stop. None the less, I'm stuck with the rest of my life and in due time I will figure out how to tell others. 

I feel like everyday is a battle with my body. I'm currently on the Depo shot, which helps out a ton. I'm blessed enough to not get my period on it, but if I'm late in updating it, I get the worse periods. They can paralyze me and make me incapable of doing anything. On the outside, I look like a care free young adult. On the inside, I'm slowing deteriorating from pain.

It's life as I know it though.

                       

Thank you for sharing your story, Lynn. You are a very strong woman. It isn't fair that we have to suffer for so long before getting the answers we deserve. 
Despite having a difficult time with doctors, Lynn continued to fight to get answers for her pain. Her story is very encouraging. She is an amazing example of the courage and strength!

If you would like to share your personal Endo Journey, please leave a comment below or e-mail helloendoblog@gmail.com

xo Heather

Wednesday, January 9, 2013

Endo Awareness Month: Photo-Mosaic

I recently heard about the following project from Jodie, an inspiring woman who is dedicated to spreading "Endometriosis Awareness through Art":


The Details:

I want to create a photo-mosaic made up of your faces as an awareness activity for March. Endometriosis impacts women and their loved ones worldwide. This is one way to show that and raise awareness.


I would love to create one photo-mosaic or a series of them if I get enough pictures. Mosaics created by pictures of the "Faces of Endometriosis", pictures of you and or your loved ones.

The pictures you send will not be used for anything else by this page. The final photo-mosaic will be posted on this page during awareness week. Please note I do not have control over the use of the pictures after this point, this is a public page and the mosaics are created as an awareness project so the aim is for them to be shared.

Please send your self-portraits to www.facebook.com/EndometriosisAwarenessThroughArt


How To Get Involved:
 
Post your picture on the Endometriosis Awareness page stating that you want it to be added to the mosaic.

Post your picture on this event page stating you want it to be added to the mosaic.

An album of posted pictures will be created as the project progresses. All pictures submitted will be stored there as the project progresses. Again please note this is a public page and an awareness project.

As a part if the awareness side of the project, I'd love to get #endometriosis trending on twitter and Facebook etc in march between 4th and 11th march endo awareness week. So I will create the photo-mosaic and I ask you to post the pic you have included in the mosaic on twitter etc with #endometriosis in the post.

Project is open for submissions from NOW until the 25th February

                                           

This is a fantastic way to spread awareness during Endo Awareness Month in March! Please participate in such an amazing opportunity! 

If you will be sharing your photo in the mosaic, please leave a comment below!

If you have an event or idea you would like to share for Endo Awareness in March, please contact me at HelloEndoPR@gmail.com .

xo Heather

Common Endo Misdiagnoses


I am pleased to share an original post from the amazing Project Endo team:





Special thanks to Jo Gifford and the team at Project Endo for allowing me to share such an amazing post! This post is also featured on Project Endo

xo Heather

Tuesday, January 8, 2013

RE Consultation

(Photo Credit: Advanced Reproductive Center of Hawaii)

I have my initial consultation with my Reproductive Endocrinologist tomorrow. I do not want to hear bad news, but I understand why my doctor is having me find out the answer.

I will post the results as soon as I find out!
 
pray
pray
pray

 xo Heather  

Monday, January 7, 2013

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