Choosing a Doctor

Every Endo Sister that I have communicated with has a story or stories of a bad doctor or specialist experience.

I was officially diagnosed with IC and PFD in September 2012 and Endo in November 2012, and have already experienced horror stories from the urologist that diagnosed me and the gynecologist that performed my initial laparoscopy. If you would like, you can read my stories here and here. 

I never want anyone to have terrible doctors, or to experience the awful stories that I have learned of.

 Since I want everyone experiencing pelvic pain to choose the best doctor, I have decided to make a list of personal advice. I have contemplated and searched the internet for the best advice that I can give women who are experiencing pelvic pain.  

Here are some useful tips:

Record all of your symptoms in a pain journal

 Be as specific as possible. By doing this, when you have a consultation you can quickly reference your worst days and the location of your pain. Read about journal ideas here.

Keep a food diary 

There are free calorie counter apps that make this easy. If your doctor says that you need to change your diet, you can quickly and easily show the specialist what you have and have not been eating.

Write down a list of questions

Write down a list of questions that you may have during your consultation. Bring this list and make sure every question you have is answered. Make sure you completely understand every response the specialist gives you. It is very important that you leave the consultation fully informed.

  Have ALL of your medical records

Before going to a new specialist, make sure that you have all of your past medical history with you. You can have your records sent to your new specialist, but it is also a good idea to have them on file personally. Another useful suggestion is to always ask for your medical record every time you leave an appointment.

 Do your Research

 There are many endometriosis support groups, endo sisters, and organizations that can help you find an excellent surgeon. Search the internet, and do not settle. Read reviews online, ask co-workers, friends and family. Word of mouth is an excellent way to hear about good and bad physicians and specialists.

Go with your Gut

If you are having a bad feeling about your treatment, stick with your gut feeling. Most likely you are correct, and something is off. If you are seeing a doctor, and do not feel comfortable in their care, find a new doctor. It is the simplest piece of advice that I can give you, but it crucial.

Do you have advice for choosing an endo specialist or surgeon? If so, leave a comment below!

xo Heather