Showing posts with label Endo Happy. Show all posts
Showing posts with label Endo Happy. Show all posts

Tuesday, May 28, 2013

Endo Happy: Are You an Endo Warrior?

Image Courtesy of Katie with Endo Happy


 An Endo Sister's Guide to Living with Endometriosis

  • An "EndoWarrior" eats healthily, says no to junk food and educates herself about the "EndoDiet" and incorporates it into her daily life knowing that it may help with her symptoms and long term care.
  • Empowers herself by finding out as much as she can about Endometriosis and knows she deserves and is entitled to the best medical care available to her. She doesn't accept no for an answer from any medic and gets a 2nd/3rd opinion if required.
  • Knows that there is no 'normal' everybody is on their own journey and doesn't compare her life to anybody else's.
  • Is proud of every scar on her body, she knows they represent the battles she had fought and won.
  • Takes time to rest and relax. She accepts that Endometriosis is disabling at times so doesn't try to do everything, instead spends her valuable time doing the things she enjoys and says no to the things she doesn't or that give her stress.
  • Takes time to exercise (if possible) at least once per week as she knows it makes your mind and body stronger.
  • Promotes awareness of Endometriosis by telling friends, family and others about it.
  • Continues to work towards the goals she has in life, she knows that it doesn't matter how long it takes to get to them just that they are achieved.
  • She acknowledges that depression is common among chronic illness sufferers and talks about her feelings, and asks for help when required and knows it is okay to be emotional and cry!
  • Lastly, she knows that she is perfectly 'imperfect' and feels proud of everything she has achieved! She accepts herself as she is and knows she is worthy of love, kindness and respect.
                                          

For more words of encouragement on surviving a life with Endometriosis, please follow Katie on Twitter!

xo Heather

Monday, February 4, 2013

Endo Happy: Validate Yourself


Most sufferers of Endometriosis face so much on a daily basis that we often start to accept the pain and emotions as a part of our daily life. But when you're having a bad day I find it helpful to validate the feelings I'm having, this is not feeling sorry for yourself it's acknowledging what difficulties you have had to overcome to make it through the day.
 
 The next time you're going through a difficult time make a mental list of what you're having to overcome, maybe it's pain that meds will not get rid of, tired from another sleepless night, worrying about money problems, unpleasant side affects from hormone treatments etc and take a few minutes to see why you're having such difficult time sometimes often doing the simplest things like physically getting out of bed when you're in pain.

It's easy to feel like you're getting nowhere, I have always felt like my life just went round in circles but when facing my most recent surgery I had an 'AHA' moment and realized how was I of supposed to achieve all the things I wanted to when so much of my life comprised of pain, surgery and unpaid recovery absence from work. I had however achieved things that I didn't give myself credit for and now that I am post op I can see that getting out of bed and going to work while in so much pain was an achievement in itself!

So the next time you are being hard on yourself acknowledge the daily challenges you face and simply say 'I am imperfect, I'm doing my best and I am enough!"

                                             

Special thanks to Katie,  founder of Endo Happy for another great post! If you are not already doing so, please follow & connect with @_EndoHappy on Twitter!!

xo Heather 

Saturday, January 19, 2013

Endo Happy: Acceptance

As I mentioned before, Katie from Endo Happy has become a Guest Blogger! Here is the first Endo Happy post

(Photo Credit: The Coffee Klatch)

I don't see acceptance of a situation as defeat, rather as acknowledgement of something that is present and needs to be considered as part of your life. We all want a cure for Endometriosis but the reality is that we do not have one yet, and it may be quite some time before one is found. So alongside fundraising and raising awareness accept that you have this condition and do what you can to make your life a little easier.


Think about the daily struggles that you face and pick maybe the 2 or 3 of the worst ones and find ways to try and overcome them.

2012 was a particularly difficult year for me, almost from the 1st January onwards, but I made these changes and they helped ease my day:

1. The skirt of my work uniform became so tight sometimes due to bloating that I was self conscious and very uncomfortable on those days, I eventually gave in and bought a bigger size, it immediately gave me a sense of relief and I wish I had done it sooner

2. In an attempt to keep eating healthily and feeling good instead of something sugary/fat filled on my weekly shop I instead bought myself a bunch of flowers for my bedroom (£3) They lasted 7 days and made me smile every  morning.

3. Sleeping was a problem, I was exhausted most of the day but suddenly at night my mind would come alive and I found it hard to switch off. I bought a notebook and in it made a list of all the things I needed to get done and made an entry for each day to remember to get them done, I took it to bed with me and would make notes as and when things popped into my head. It didn't work every night but some nights knowing I was organized I peacefully fell asleep.

These are just things that helped me, what could help you in 2013? :-) x


Sunday, January 13, 2013

Hello Endo Guest Blogger: Endo Happy

(Photo Credit: Endo Happy)
  I am extremely happy to tell you that Katie, our Endo Sister behind the "Endo Happy" twitter account will be be starting weekly guest posts!

I am so excited to share her goal to make women with endometriosis happy and to uplift their spirits!!!

Be on the look out for Endo Happy posts starting next week! Learn more about Endo Happy here, or follow Endo Happy on twitter!

xo Heather 

Endo Happy

 Endo Happy

(Photo credit: Endo Happy)

I'm a 38yr old Endo-Sister from the UK who is currently recovering from a Hysterectomy after a lifelong battle with Endometriosis.

I benefited from the support of my Endo-sisters so much in 2012 and wanted to give back that love so I launched @_EndoHappy on the 1st January 2013.

My aim is to find and connect all the Endometriosis sufferers on Twitter to share the support and make everybody know they are not alone. I also promote healthy eating and exercise as a way of managing the pain & emotions that we all have to deal with as well as encouraging people and sharing information that I find interesting in a fun and positive way!

So far I have gained over 300 followers and found over 800 of you which is great, if you are reading and haven't already followed please have a look at the interaction we have all had so far!

                                      

If you are not following Endo Happy yet, please do so. Endo happy is a wonderful way to connect with Endo Sisters all over the world for encouragement, support, and friendship. 

P.S.  Congrats to Endo Happy for growing so quickly!!!!

xo Heather 

Monday, December 10, 2012

Endo Journey: Melissa

Hello everyone! I was hoping to find other Endo Women who would like to share their personal Endometriosis journey on my blog, so I was very excited when Melissa agreed to share her story with us! Read on to find out about Melissa's winning battle with Endometriosis:


Melissa shares her Natural Healing Journey with Endometriosis
I remember the first day of my period. I remember it because it was the first day I had heard those famous words, us endo girls are possibly too familiar with: “It is normal to experience pain with your period”.
With period pain being a normal part of womanhood, I also began to accept moodiness, headaches, migraines, nausea and diarrhoea as normal with my period too. I just expected that every woman in the world endured these things and hey, it is what womanhood is all about! Right?
It was only after a long trip away, having my period and a bladder infection at the same time, that I realised that what I was experiencing was far from normal. After a 7hour drive and few toilet stops, my abdominal area swelled up, like I was 3 months pregnant. I was 19years of age and it was the first time, the words Endometriosis entered my mind. I had visited my doctor with few answers and an inner voice told me it was related to my womanly bits! I went to the Gynaecologist and he immediately recognised the symptoms as Endometriosis. My operation was done a week later and they discovered Stage 4 Endometriosis. I really believed that after the operation, they had fixed me. That it would be the end of it all.
A few weeks after having recovered from my operation, I was sitting in my Gynaecologist’s office and he was explaining what Endometriosis was and started presenting me with various options on what I could do to “treat” it. I remember it all being a big fat haze and the words: “there is no cure” and “you have a limited chance of having a child” and “you should try and fall pregnant as soon as you can” were just whirling around in my head.
I eventually tried a nasal spray that would stop the Endometriosis growth by stopping my hormones from producing too much Oestrogen. I had relief from Endometriosis for 6months. I didn’t experience any pain or any problems at all – I didn’t have a period and it was fantastic! I felt so alive and excited that there was a “cure” for Endometriosis!

I received a phone call from the doctors office and they scheduled in an appointment with my Gynaecologist again. He quickly informed me that I couldn’t keep taking the Syndol nasal spray as it would affect my bone density. I was young and naive and just wanted the pain to stay away, so I begged him to let me have it for longer. I remember saying to him, that I didn’t really care about the consequences, that I just wanted to be pain free like I had been the last 6months. He told me that we would explore all the other options out there and find something that would work for me.

I spent the next 10years being a Guinea Pig for every drug, hormone treatment and pain-killer on the market for Endometriosis. I went through another 6 operations and ultimately my Gynaecologist and I never found something that worked for me. All the treatments out there always presented a series of side-effects which my body seemed to react to instantly.


I eventually immigrated to Australia and something changed. The truth is, I couldn’t go for another operation – I had no medical insurance and the waiting time was over a year away. I was stuck. My endometriosis pain was unbearable! I could barely keep my job from all the pain and my stress levels were getting higher and higher with worry. I had to do something!
One of the things that I found really interesting in Australia was just how many Chinese Practitioners were in Australia. They claimed to be able to treat all sorts of conditions and I felt so desperate I decided to give it a try! I vowed to myself that if it didn’t work in the next 6months, that I would fly back to South-Africa and get the operation done there.
I stuck to all the principles of Chinese healing. I changed my diet, cut out lots of bread and pasta’s, ate more fruits and vegetables, walked daily and practiced deep breathing exercises. I took the funny herbs that were given to me each day and followed everything my practitioner had said.
Within 6months, I was completely pain free. I had NO PAIN! It was unbelievable and I really believed that was it! I was cured!

I had no idea what my practitioner had really achieved and just believed they were some miracle herbs and I could go back to “normal” again.
What I didn’t understand is that the body works in balance and alcohol, rich fatty foods and stress all throw out this natural balance.

I went on the contraceptive pill (I had a new man!) and slowly but surely my PMS and all my related symptoms of Endometriosis started to reappear. I had thrown out the natural balance.

Over the next few years, I learnt some valuable lessons. I learnt that my body is sacred, that our bodies need balance to heal and thrive and that everything we add in…matters!
I started my own personal journey with natural healing in June 2010. I changed. I learnt and I have grown so much!
I no longer experience pain or inflammation. I have lost a dress-size in 3months! I have taken up running and my sex life is better than ever!

I share this journey on my blog and how amazing my life has become since following the natural ways. I share everything with you, so you can grow and learn from me!

You can visit my blog at www.cureeendometriosis.com


Hugs,
Melissa
                                           
P.S. Special thanks to Melissa for sharing such an inspiring story! Make sure that you check out Melissa's websites! If you would like to share your story, leave a comment below!
xo Heather
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